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Petition Tag - hypoplastic
Following the deaths Charlie & Kian Jones from a congenital heart defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS), the Charlie Jones Foundation was established.
They endeavour to raise awareness into HLHS and to also fundraise for our local PICU.
CHD's a the number one killer in babies and many often go undetected until the child dies and a post mortem is carried out. There is hardly any research into heart defects in this country yet the Government plough money into cancer research when statistics show that the highest number of infant and child deaths is due to a heart defect and not cancer.