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Petition Tag - epilepsy
Zahra Mansouri, an epileptic prisoner, has been denied access to her medication in prison. Zahra Mansouri, 60, began serving her two-year prison sentence on October 27, 2012.
Zahra Mansouri's physician has warned against conditions that would bring on epileptic seizures for Mansouri, but prison authorities refuse to allow her access to medication provided by her family. Mansouri suffers from serious health problems caused by a recent intestinal operation.
Ms. Mansouri needs to regularly take her medicine and live in a stress-free environment, according to her doctors. Both are being denied her in the Islamic Republic's prison.
Security forces first arrested Zahra Mansouri on June 1, 2011. She spent 90 days in solitary cells inside the Intelligence Ministry's Ward 209 at Evin Prison. During her detention, she underwent surgery due to breast cancer, and immediately after her operation, authorities transferred her back to her solitary cell. She was released on bail on August 19, 2011.
Branch 26 of Tehran Revolutionary Court under Judge Pirabbasi initially sentenced Zahra Mansouri to five years in prison on charges of "acting against national security." Due to Mansouri's ill health, her sentence was reduced to two years in prison and an additional five years' suspended imprisonment.
Zahra Mansouri's brother, Mohammad Ali Mansouri, is a political prison who has been serving a 17-year prison sentence in exile in Rajai Shahr Prison on charges of "relations with groups hostile to the regime". Zahra Mansouri has been exposed to a lot of pressure due to her familial ties.
2. Give Nathan Duszynski a job for his family 
Today is a sad day for the city of Holland, Michigan, particularly for one resident who was trying to help out his family survive. That family-dedicated resident is none other than 13-year-old Nathan Duszynski.
The reason why this petition was made for him is because he and his family are in a shelter after being denied from selling hot dogs from a mobile stand. You see, Nathan was trying to help his family to survive in Holland, Michigan because his mother and father are disabled. He signed up for his own food cart to earn some money. But the moment he started to sell at a local sporting goods store, City Hall shut it down. Now they have two different homes to cope with the parents' different disabilities.
The point is they shut him down because he was not connected to any business, but it was still unfair for him and his family. So, this petition is a rallying cry for signers, not just from Holland, Michigan, but from the entire United States and the world as a whole, to support him in on of these ways:
a) Convince at least one of the brick and mortar businesses to train him for a job within their premises.
b) Start a Kickstarter fundraiser for Nathan Duszynski to help him train to be a businessman and run a great business.
c) Convince City Hall to let him sell his hot dogs in a store and even hire others in hot dogs carts to spread the goods.
If everyone helps out Nathan to earn money legally, we will be a better world of people for all to see.
You can see the story at:
http://news.yahoo.com/teenager-not-allowed-sell-hot-dogs-now-homeless-180604654.html
Or:
http://dailycaller.com/2012/08/10/teenager-not-allowed-to-sell-hot-dogs-now-homeless/
For Kickstarter, go to
www.kickstarter.com
Thank you for supporting Nathan Duszynski!
3. Foetal Anticonvulsant Syndromes Awareness
Foetal Anticonvulsant Syndrome (FACS) can occur when a mother has to take epilepsy medications (anti-convulsants) during pregnancy. Anticonvulsants are also used to treat bipolar, mood disorder and migraines.
A child exposed in utero to AEDS such as valproate, phenytoin, barbiturates and carbamazepine may experience delay in developing speech and language or may have difficulties with social interaction (autistic spectrum), memory and attention. Some may also have other conditions, such as spina bifida, heart defects and ocular abnormalities etc. They may also have characteristic facial and physical features.
My son has been to visit a paediatric geneticist who is considering the possibility of Foetal Valproate Syndrome or FVS (which is one of the anticonvulsant Syndromes). He is currently undergoing a wide range of testing and is being referred to a number of health professionals to assess his case.
My other children (both girls) have other issues including learning difficulties and vision impairment which our geneticist does not believe to be enough to prove a link to FVS. In my mind however, whilst it is possible that these are merely coincidental it is also possible that valproate effected them to lesser degrees.
I would like to call for the Australian government to legislate warnings on all anticonvulsant medications regarding the risks of the full effects of Foetal Anticonvulsant Syndromes and where children have been exposed in utero to these teratogens, screenings should be scheduled throughout early childhood in order to diagnose and provide treatment and support as needed for these children and their families.
Ryan Tucker now 29 years old went from an abusive home to prison with no stops in between, he also suffers with epilepsy, has a brain tumor and has had his skull sliced into by a metal fan blade, he depends on medication to survive each day but he also needs therapy to help his rehabilitation.
Returning to prison will not help him become a better citizen, it will destroy the true man inside.
5. New Educational Legislation for Autism and Neurodiversity
The prevalence rate of 1 of every 150 makes autism one of the most common developmental disabilities, affecting more children than childhood cancer, Down Syndrome and juvenile diabetes, combined.
Autism manifests differently in every individual on the spectrum. However we all have three commonalities, we socialize intellectually, which effectively means we are genetically different than the general population. The second thing is that we are by definition an invisible class of people, third we don't lie (theory of mind).
Another misconception about us is that autism is more severe for some individuals than others, how can any researcher make this deduction when they have not worn our skin? I have High Functioning Aspergers, my language abilities are amazing, this being said I am rendered silent in social situations due to my anxiety, inability to trust, and how much I truly will bore my listener.
You can't begin to fathom the frustration, being ostracized, of knowing that for all of time I will never be able to communicate verbally to others. The anxiety, depression and isolation is overwhelming, when considering this idea. Do I really have the ability to speak? No only via typed words, the fear of not being able to figure out where people are coming from is debilitating. It is safe at home, I know that there are hundreds of thousands of parents who battle every day with the public school system.
You are not alone my child suffers every day he goes to school, his FAPE is violated, he is physically abused, misunderstood by professionals who carry titles that say they specialize in helping him. I have come to one conclusion, I can't hide anymore I will not tolerate another child being misunderstood by the public school systems in this country.
I will not see these children's unique gifts squandered away because they don't think like the rest of this world! Join me in signing this petition to demand that our Congress change the educational laws and system for education our very special children, and remove the glass that all autistic individuals stand behind.
6. Stop Bev Perdue From Cutting Epilepsy Services Funding!!
Beverly Perdue & Linda Garrou are cutting the funding for the NC Neurologic Epilepsy Program. The cuts include the Epilepsy Information Service, The Epilepsy Medication Fund, and some funding to 4 Health Departments. Without these services at Wake Forest University Baptist Medical Center a great number of people with Epilepsy in North Carolina will have nowhere to go for support or information.
I know that a lot of people signing this may not know me personally, but I need your help. I am a 27 year old stay at home mom of a two year old and one year old. I am just one of the cases that will be affected greatly by the budget cut. I was diagnosed in 2007 with Epilepsy. I can't tell you the worry I feel every day that today might be the day that I have a seizure. Without the help of the NC Neurologic Epilepsy Program, I don't know where I would be. They saved my life and many others. To them, my family and I are extremely grateful.
Please help me and stand up for the 200,000 mothers, fathers, children, sisters and brothers that are diagnosed each year. It takes just a moment to sign this and pass it on, but it is worth it to save a life!
Beverly Perdue & Linda Garrou are obviously uninformed of the severity of Epilepsy and our need for The NC Neurologic Epilepsy Program. Help us inform them!
Thank you for your help and support!
A wife and mother living with epilepsy,
Megan Burchett