|Home | Bookmark | Tell||Active petitions in over 75 countries||Follow GoPetition|
Make my human rights a legal entitlement
Petition Background (Preamble):
A lot of money is being spent on services that are tied up in unreasonable red tape, which further inhibits both the person with the disability and carers working toward a good quality of life for all parties, including family members. Carers, family members and the person with the disability need their human rights to become a legal entitlement and the monies that are available for their supports to be delivered directly to them, with simple and reasonable accountability.
The experience of the majority of the above is that currently the people who benefit most from current funding, are the people employed to administer the available funding for supports. In many cases the supports that are delivered to these families are reactive (when the family is at breaking point) and not proactive (early intervention empowering the family to be productive, earning, paying taxes, staying together, etc). The experiences of carers and people with the disability are the foundation for bringing change.
They need assistance to get this information to the policy makers, while expending little time and energy commitment, because of their caring role; or in the case of the person with the disability, lacking the support or capacity to speak up. This petition is about putting 'a fence at the top of the cliff' instead of putting 'an ambulance at the bottom'
Simpler direct proactive early intervention/support to families;
Diagnosing professionals made more responsible for assessing and linking families with supports;
Families not being expected to carry out clinical procedures as unpaid practitioners while still having the power of decision making in consultation with clinical professionals;
In the case of families with a situation of long term palliative care a sufficiently funded, joint approach with clinical care and support between family and medical professionals, guided by the needs of client and family and carer;
Building financial capacity for dedicated carers on carers pension eg do not means test the pension, superannuation paid on their behalf, support to have the option to stay in the workforce part-time to prevent long-term disadvantage regarding employment where caring role comes to an end;
Addressing the poverty trap carers and families often find themselves in, where the disabled persons care needs are very high;
Families having the option of managing funding with simple accountability without unreasonable red tape reflected in a joint agreement of what the support needs of the disabled person and their family members need;
Changes in cultural thinking eg lift the profile of people with a disability eg: ongoing national education;
Removal of disability funding from Centrelink which is illequipped to deal with families who are often hanging by a psychological thread on a day to day basis (this is usually the case in situations of very high support needs);
Remove disability funding from Child Safety for the same reasons above;
Disability having its own portfolio (Department as stand alone);
The minister and staff who are entrusted with the portfolio of disability to be legally required to do a minimum of four hours per week at the cold face of disability eg: clean a soiled backside or wipe spittle from a siezuring or dribbling mouth of a very vulnerable person. This needs to be the case for all government employees who are entrusted with funding for their support to assist with common sense decision making on the part of those with the power (including service providers). (Practical exposure to daily life issues);
Service providers regulated more tightly to prevent them from doing little more than riding on the back of the funding allocated for the support of a disabled person and their family, reflected in formal training for carers with minimum industrial standards. Development of career paths for support worker to advance;
Removing the lack of security of funding for people with disabilities and their carers with rights based legislative entitlements ( similar to Centrelink as a citizen entitlement) to receive needed services, so that government bodies cannot pull funding when a plan of positive lifestyle or palliative care support is in place or being established.
The Make my human rights a legal entitlement petition to parents/carers of family member with a disability, persons with a disability and all Australians was written by Brenda Savage and is in the category Human Rights at GoPetition. Contact author here.