|Home | Bookmark | Tell||Active petitions in over 75 countries||Follow GoPetition|
Demand Funding for Life-Saving Treatment of PNH
Petition Background (Preamble):
Paroxysmal Nocturnal Haemoglobinuria is a very rare, devastating and often fatal disease, affecting 70 Australians. There is only 1 effective treatment in the world, Soliris® (Eculizumab), which is available in over 30 countries but NOT Australia.
We are urging the Federal Government to take urgent action to allow Australian PNH patients access to Soliris.
We therefore ask the House to introduce and pass any legislation or to take any administrative action available to the House that will enable sufferers of PNH disease to urgently receive breakthrough life saving treatment for this very rare and debilitating disease.
The Demand Funding for Life-Saving Treatment of PNH petition to To the Honourable Speaker and Members of the House of Representatives was written by PNHSAA and is in the category Health at GoPetition. Contact author here. Petition tags: pnh, paroxysmal nocturnal haemaglobinuria, soliris, eculizumab, pnhsaa, rare disease, pnh disease